Friday, August 24, 2007

Joan, You Have To Have Chemo




Thank goodness I take notes during these doctor's appointments because those words "Joan, you have to have Chemo" keep ringing in my ears.

Joan and I went to her long anticipated second opinion today and let me tell you it was brutal. We went hoping to validate what we had heard from our terrific Oncologist Dr. Stephanie Capone and to some extent we did get that validation. However, Dr. Maria Flores has a very different way of looking at things and boy did we get a different view into our futures today. In life I guess it is always how you look at things.

Of course we arrived way to early as we usually do to this appointment but we were ushered in pretty quickly when a guy who must have ridden his skateboard to work shouted "Jo Ann!" into the waiting area. We knew he meant Joan (how do you get Jo Anne out of J-O-A-N? Joan asked. Who can answer such things?). Anyway, after a lying bastard scale and blood pressure check we waited for Dr. Flores.

Dr. Flores is not a large woman. But she exploded into the room like the Tasmanian Devil.

JO ANN?

Sure, that's me...

Dr. Flores was also unimaginably loud for the tiny cinder block room we were sitting in. Her shouts of welcome made us flinch in the tiny room and the she proceeding to examine JOAN. She mashed all the favorite lymph node hang outs in her neck, arm pits and groin area and threw herself into a chair. That is when everything quit being so funny.

Dr. Flores tells us that most of what we know about Folicular Lymphoma is correct. It grows slowly (good news!) but can kill you and is incurable (dang...). But her advice was completely different that Dr. Capone. Where Dr. Capone wants to wait because chemo is pretty destructive to your body, Dr Flores wants Joan to start chemo soon. Her reasoning is that everybody who gets this type of Lymphoma must have chemo and to wait until she is fifty will only add the further inconveniences of arthritis and other maladies of aging.

Worse still, Dr. Flores continued to ask probing questions about Joan's symptoms. She determined that Joan has not only stage three cancer, but a worse kind of stage three (3B) because of her night sweats. She has had the night sweats for a couple of years and those dramatic up swings in body temperature are a really bad sign for cancer patients. To Maria Flores, once that happens, you get chemo, no question about it.

Some new things about her Lymphoma that we learned were that the indolent period of her Lymphoma is usually about 5 - 10 years. We think Joan had this thing for a couple of years before we finally had it diagnosed. So she has a couple of years left easy before the average person would begin to feel the effects of the disease. The other news is that once she has the chemo if it is effective (over 90% of the patients have the cancer completely removed when the therapy is complete) she can look forward to a 5 - 10 year period of remission. Unfortunately this type of cancer is also the type that will frequently turn into a more aggressive cancer like Liver or Lung cancer. So with all of this information Joan knows that she will have to get chemo therapy and although some of the timing may be in her hands, ultimately she will be strapped to a chair for hours per day and have poisons pumped into her body.

So we left the office and had a beer.

We have scheduled another appointment with Dr Capone to further discuss these new revelations and get a game plan for our next course of action. Until then we are still in a period of constant reevaluation of our out look on this disease and it's impact on Joan. And our view on the issue is constantly changing. I guess it really is all about how you look at things.
Looks half full to us.

10 comments:

Anonymous said...

Damn. I'm going to get a cold one...right now!

LOVE YOU BOTH!

Anonymous said...

Wow, What a Gal!! That's not a quote from a movie, (but it could be a line from a song "My Gal Sal"). :) Just a comment from an old redneck uncle here is Sardis, AL.
You are absolutely correct! When faced with adversities, your cup can always be half full. That is your choice. For me, I choose half full also.
My family has had it's share of cancer. My mother, adopted mother, stepmother, two brothers, and three neices at a very young age and several aunts and uncles.
Theirs was the no hope type of cancer, but they chose to fight it anyway. But each had only one doctor and one opinion and they did what the doctor said just because he was the doctor.
I have an eighty five year old aunt that is the exception. She doesn't have cancer but she has been through some mean surgeries. Before her heart bypass she was asking the doctor some questions and he acted sort of put out with her for questioning him. She just got right in his face and said, "Listen doctor, this is my bobo and you are not doing anything to me until I know everything there is to know about my condition and my prognosis, understand?" After that the doctor was quite willing to accomadate her.
So you study and ask questions and know everything there is know about your bobo and then make an educated decision about the treatment you choose. I don't know much, but I have come to realize that one doctor doesn't know all there is to know. (Even though most of them think they do)
No one can possibly know how you feel unless they have been there and done that. We can sympathize but we cannot empathize.
Your choice is your own. Learn all you can before you make your decision, then make it and don't look back and second quess that decision.
And above all, no matter how tough the row is to hoe, keep your glass half full and your rows will always be stright and the harvest will be full. Dang, did I say that? Must be something I heard in high school literature or something!
You go girl! You have a fan club out here made up of friends and family that support you and love you. Our prayers are continuous for you and they go up to the one Physician that does know all. He is good and He does heal.
When I feel down, I read this - I keep it in the front of my Bible.
"I found a penny today just lying on the ground. It's not just a penny, this little coin I've found. Angels toss them down to chase away your frown. So don't pass by that penny if you're feeling blue. It may be a penny from Heaven that an Angel tossed to you.
See these great promises:
Matthew 7:7-11 ; John 16:23-26
We Love You, Uncle Paul and Aunt Sherry

Anonymous said...

OK, half full works for me. We are always here with you and this journey will be many things, but one thing it won't be is LONELY! You are perpetually surrounded with love and prayer, sweet Joan. Always and always.

Anonymous said...

We are thinking good thoughts about you.

Norm said...

Half full indeed. It's great not only to get the second opinon but to get both from docs you respect. So, choices, choices. Well, that's gotta top having no options at all. You are, as always, in Leah and my thoughts and prayers.
One other thing, Joan's Joan/JoAnn thing is Leah's bane as well. More often than not she's "Lee". Go figure?
Love ya both and thanks for keeping us looped in.
Norm

Anonymous said...

You both are in our thoughts and prayers every day.
Love, TJ and Diana

Anonymous said...

You both are real positive thinkers. Keep praying, and God will give you the right discernment. We're praying for you too.

Val said...

Joan,

Wow, what a journey you're on. You're in my prayers and I will continue to think the glass is 1/2 full too.

Valerie

Anonymous said...

Joan and Alan,

My heart goes out to ya! Don't know how bad things happen to 2 beautiful people! I always try to look at the positive side of things and believe things happen for a reason. I think I'm gonna have a beer and toast to your chemo being a success.

Love
Nancy in Savannah

Anonymous said...

Alan & Joan,
Your love and respect for each other will help you pull through this. We will continue to pray for you two.

Mike & Angi