Saturday, April 12, 2008

The Latest is Good News






The news from our latest scans is great but first – a little WDE 1st anniversary update.

As most will remember it was on the same day that Joan was told she had lymphoma that I was let go from a job that I had for 15 years – to the day. So we called that day “Worst Day Ever” and vowed that we would always celebrate that terrible day’s centenary in some special way. This year for the “Paper” anniversary we tried to win some in Las Vegas. Although the winnings were minimal we came back rich in amazing vacation memories.

The most amazing happenings had nothing to do with gambling at all. First we went to see Spam-a-lot, the musical written by the Monty Python gang and it was absolutely riotous. Also fun was spending a Saint Patrick’s Day together for the first time in fifteen years. Joan was so excited about it that she made her own dress for the occasion and no less than ten slightly (to mostly) inebriated young girls begged Joan to make one for them too. And finally we spent a day in the dessert with a scientist as a guide. Red Rock Canyon in Nevada is beautiful. Like most of the sand stone in the west it all started as massive dunes in a Sahara-like desert which was eventually buried by time and pressurized into sand stone. The unique feature of this desert is the high amount of iron caused a red color to emerge in the stone. It is a miraculous place.

Anyway, Joan had her latest scans read a couple of weeks later and the results look pretty good. The same area of inflamed nodes in her left arm pit seems determined to make things interesting for us, but the rest of her cancer has stopped growing. Even that little guy under her arm has slowed in its growth to the extent that our doctors are allowing Joan an extra month between scans – and that was truly the best news of all. So although there is still growth, it is growing at a slower rate. For the last 14 months Joan has gone no less regularly than 90 days between scans, and now she gets to wait 120 days.

Much of follicular lymphoma’s progress is random. Its very nature is to “Wax and Wane” throughout a person’s life. But in an effort to be proactive in her healing, Joan is taking shots of Wheat Grass Juice several times per day. For those of you who might not have had the pleasure of drinking this vile cocktail it tastes like the last three letters in the word Wheat Grass. She has started every day for the last three months drinking a 2 oz shot of freshly (and loudly) squeezed juice at five AM and following it with nothing for 30 minutes so as to give her body its maximum effects. Then at other times during the day she hits the grass again and again looking for 8 – 12 ounces per day. I have read many times that dogs eat grass when they need to vomit because of an upset stomach. I have to tell you after sampling this swill that dogs are smarter than you think.

As I tell friends and family that this is a big deal they generally seem to get stuck on the fact that the cancer is still growing. But having so recently seen so glorious a testament to God’s creativity and power – and so wonderful a demonstration of patience – we are renewed in our belief that we will continue to keep the harmful effects of her cancer at arms length.

11 comments:

Norm said...

Well, other than the swill and the meager winnings this is all great news. We're so thrilled the wane is whipping the wax!
Bless you both.

Unknown said...

Congratulations! Other than having to drink something truly distasteful it seems like it is all turning toward the positive. Just to let you know, my best friend who went through chemo for her "version" of lymphoma just had her final scan last week and is officially in remission! I know that the power of prayer played a huge part in the outcome and I know it will for you too! It was so good to see the both of you on Easter Sunday! Please know you are both in my prayers - keep smiling! With much love, Megan :)

Anonymous said...

It's so wonderful to read updates like this. You are loved and prayed for more than we can say.

Anonymous said...

Awesome, I am happy the little monsters are not growing and slowing down some. How about a picture of your St Pat's outfit? Nancy in Savannah

Anonymous said...

Only my incredibly determined and disciplined sister could persist with that yucky swill! Looks like it may be helping though; way to go! The 120 day interval is fabulous news! I'll be rooting for 180 days next time!
You rock!
Jen

Victoria said...

HOLA JOAN:

Praise the Lord for all the great news you always tell us.

I will keep praying and thinking about you.

Wish to be able to see you soon.

Paz, Amor y Serenidad, Victoria

Anonymous said...

Hi Joan!
I just wanted to say that I frequently check this blog to see how you are doing. I'm living in LA now (crazy, I know) and I often think of you and send positive energy your way. I'm so glad to see that this most recent entry had good news!

And thanks to Alan for updating this so those who care about you can see how you are doing!

I will keep you both in my prayers!

Love,
Erin Muroski

Anonymous said...

Alan and Joan,
We've been reading the blog to keep up with you. This does sound like good news! Your both in our thoughts and prayers.
I also have to say that I am enjoying the fact that my husband no longer works the St.Patricks day! It is a great holiday when your not working it! I would love to see a picture of the dress.
Love to you both!

Diana and TJ

Anonymous said...

Hi, I was scanning the web looking for bone marrow pictures that I could use in my blog when I came across your site.
I am a physician who does bone marrow biopsies. The first time I saw a bone marrow procedure, I became visibly ill--I thought to myself, "I'll never do one of these." Boy, was I wrong. I've done hundreds since then.
Interestingly, I will undergo lung transplantation within the next few days (? weeks) and afterwards I will be at increased risk for lymphoma due to my never having been exposed to Epstein-Barr virus (the virus that causes mono). So I'm thinking it reasonably likely that I will have one of these done on myself someday. Ironic. It will be interesting to see how it really feels.
Take care and I hope Joan stays healthy and happy.

Steve Hudson said...

Hi Joan and Alan, just found you both after 25 years. I will keep you in my thoughts and prayers.

Anonymous said...

Dear Alan and Joan

Thank you so much for taking the time to write to us, we truly appreciate it

I love the website, very touching and inspiring, when the going gets tough.......... I truly wish Joan well

Jordan is 13 now, doing very well at school .

His legs have got worse not better and we are now considering amputation as an option (jordan's idea). He pretty much uses the wheelchair all the time now except in our house as its pretty small! They are also considering spinal surgery

He did enjoy wheelchair basketball for a while but breathing problems have meant he had to give that up too

However he now enjoys fishing and playing the keyboard and he has a penchant for golf!!

We hope to update the website soon so watch out for updates!

Kind regards


Tracey and Jordan